“Paul, it’s alright” my wife said.
“Paul don’t worry you’re going to be fine” said the paramedic
“Dad” cried one of my three children huddled together in the bedroom doorway.
I was trying to wake up because it was my bedroom and there were strangers in it. Too much colour again. Lots of green this time. Uniforms, ambulance men. I tried to sit up. Someone had been hurt whilst I was asleep - why didn’t someone wake me? I don’t seem to be able to find the strength to get up or ask the questions I want to ask.
“Just relax Paul” said a paramedic. “We’re going to get you in the ambulance very soon”.
“Ok” I said.
“It’s ok darling you’re going to be fine” Angela said again. But this time I was scared, because I could tell that she was.
“What’s happened?” I said. It was difficult to talk because I was so tired and because my tongue wouldn’t work properly. It hurt too and I could taste blood.
“It looks like you’ve had a seizure” said the paramedic “we’ll get you off to the hospital and let them take a look at you.”
My grand mal siezure had shaken the house and everyone in it. It must have been terrifying for my wife and young children.
I had been asleep when the first seizure started so I missed the feeling immediately before it’s onset. Different people experience different things. Some get a warning, some don’t. Some experience what is described as an aura. Some get a strange sensation of smell or a feeling of dread.
I was awake when my second seizure struck. Seconds before, I was consumed by a feeling of dread. As the seizure subsided leaving me exhausted and hollowed out, the feeling of dread remained. But this was real, not the by product of some wayward neuro-electrical activity, this was explainable, justifiable - there had to be something very badly wrong with me.
At the time I didn’t realise how deeply affected my young family were by my seizures, how destabalised their life had just become. The solid ground that was me, had opened up beneath their feet. I was no longer reliable. I could no longer be trusted. During one of my seizures I had got to my feet and pushed Luke, my 8 year old son, nearly knocking him down the stairs. I was of course unaware of this. A grand mal seizure goes through a set pattern and during this particular phase, a subconscious fight or flight impulse can make the sufferer a bit of a handful - on the move, rolling eyes, blueish complexion, spitting blood from biting their own tongue, strong, determined, scared, unaware and uncaring.
Or as I must have looked to Luke...a monster.
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